Resources

A collection of CFHealthHub resources

A patient using a nebuliser

People with CF

Having real time nebuliser data available on a smartphone enables people with CF to track progress in adhering to the new routine, resulting in more confidence and reduced stress levels.
A doctor sitting at a desk, using a computer

Clinicians

CFHealthHub helps identify specific barriers to adherence for each patient and provides evidence based strategies, tools and educational information to support positive behaviour change.
Someone writing on a clipboard, during a meeting

Policymakers

Improving the medicines supply process for people with CF -minimising waste through 'just in time' medicines delivery

Publications

CFHealthHub has an on-going research programme committed to improving patient outcomes and quality of care.

Civil service

Patients say CFHealthHub keeps them safe as its high-definition healthcare transforms the relationship with their care team.

Patient story

Sally has a fixed routine for ensuring that she takes the right number of nebulisers at the right time. This has become part of her normal daily routine, so she does not need to think about taking her nebulisers.

Trial Documentation

This page provides download links to the protocol, patient information sheet and consent forms that set out our work on the data observatory project, a part of expanding the use of CFHealthHub.

National Efficacy-Effectiveness Modulator Optimisation (NEEMO) programme

National efficacy effectiveness CFTR modulators optimisation programme (NEEMO) – a prospective observational study.
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