CFDigiCare
The CF Self-Care Behavioural Science Collaborative learning how to support people with CF to live as normal a life as possible.
CFDigiCare is a collaboration of CF clinicians and people with CF working together to use real time data within a digital learning health system to learn how to make CF care better.
CF centres and other organisations who are members of CFDigiCare
- Oxford
- Southampton
- Sheffield
- University of Manchester
- Newcastle
- Blackpool
- Nottingham
- Birmingham
- Plymouth
- Norfolk and Norwich
- Hallam University
- York/ Hull
- Exeter
- Bristol
- Stoke
- Lewisham
CFDigiCare Steering Committee
| Post | Steering Group Role | Job Role | Trust/Organisation |
|---|---|---|---|
| Chair | Dr Martin Wildman | CF Consultant | Sheffield Teaching Hospitals NHS Foundation Trust |
| Vice Chairs | Dr Julia Nightingale | CF Consultant | University Hospital Southampton NHS Foundation Trust |
| Dr William Flight | CF Consultant | University Hospital Oxford NHS Foundation Trust | |
| Dr Pauline Whelan | Digital Health Software Lead | Centre for Health Informatics, University of Manchester | |
| Tracey Daniels | Non-medical Clinical Lead | York Teaching Hospital NHS Foundation Trust | |
| Secretary & Membership Lead | Charlotte Carolan | National CFHealthHub Quality Improvement Programme Manager | Sheffield Teaching Hospitals NHS Foundation Trust |
| Equality, Diversity and Inclusion Lead | Steve Antrobus | Senior Technical Project Manager | Centre for Health Informatics, University of Manchester |
| Behavioural Science Lead | Prof Madelynne Arden | Professor of Health Psychology and Director of the Centre for Behavioural Science and Applied Psychology | Sheffield Hallam University |
| Microsystems Lead | Charlotte Carolan | National CFHealthHub Quality Improvement Programme Manager | Sheffield Teaching Hospitals NHS Foundation Trust |
| Medicines Optimisation Lead | Dr Amanda Bevan | CF Pharmacist and Lead for the EMBRACE Programme | University Hospital Southampton NHS Foundation Trust |
| Digital Technologies Lead | Dr Pauline Whelan | Digital Health Software Lead | Centre for Health Informatics, University of Manchester |
| Education & Communications Lead | Marlene Hutchings | CFHealthHub Education and Training Lead | Sheffield Teaching Hospitals NHS Foundation Trust |
| Patient & Public Involvement Lead | Sophie Dawson | Local CFHealthHub Lead and National CFHealthHub Quality Improvement Programme Manager | Nottingham University Hospitals NHS Trust |
| Patient Steering Group Member | Person with CF | N/A | |
| Hospital Digital Integration Lead | Dr Nick Bell | CF Consultant | University Hospitals Bristol NHS Foundation Trust |
| Research Lead | Dr Carlos Echevarria | Consultant | Newcastle Royal Victoria Infirmary |
| CF MDT Representative | Harriet Gledhill | CF Dietitian and CFHH interventionist | University Hospitals Plymouth NHS Trust |
| East and South East Regional Representative | Tom Meredith | CF Physiotherapist | University Hospital Southampton NHS Foundation Trust |
| South West and London Regional Representative | Pete Moran | Pathway Lead- Respiratory Medicine | University Hospitals Bristol NHS Foundation Trust |
| North Regional Representative | Alan Anderson | CF Specialist Nurse and Local CFHealthHub Lead | The Newcastle Upon Tyne Hospitals NHS Foundation Trust |
| Midlands Regional Representative | Jocelyn Choyce | CF Physiotherapist and Local CFHealthHub Lead | University Hospitals Birmingham NHS Foundation Trust |