A digital hub for people with cystic fibrosis and clinicians
CFHealthHub is a digital self-care and behaviour change platform, extensively co-designed with people with CF and embedded in over 60% of adult CF units in the UK.
What is CFHealthHub?
Creating a community of practice, sharing data to discover how to deliver optimum care
CFHealthHub helps identify specific barriers to adherence for each patient and provides evidence based strategies, tools and educational information to support positive behaviour change.
For clinicians & doctors
Reducing the burden of cystic fibrosis by creating habits of self-care
Having real time nebuliser data available on a smartphone enables the patient to track progress in adhering to the new routine, resulting in more confidence and reduced stress levels.
For patients
An exemplar demonstrating the potential of shared learning in delivering cost effective self-care in multi-morbid long term conditions
Who is the CFHealthHub team?
It takes a village, and ours is made up of people from a diverse range of backgrounds, from statisticians and software engineers through to academics and CF clinicians.
Meet the CFHealthHub teamCFHealthHub Videos
The biggest cystic fibrosis study in the UK
By capturing real time information via patient nebulisers, CFHealthHub has enabled clinicians and researchers to better understand medication use in people with CF, and the platform facilitates a range of evidence-based interventions including problem solving and creation of detailed plans to support treatment-taking.
Our researchCFHealthHub was created over 6 years by a National collaboration involving
